This is a selection of IBS research studies that have come to the attention of IBS Impact from various sources. We encourage researchers who wish to have their studies considered for posting here or on the IBS Impact blog, or to have a listing updated or removed, to email us using the contact form on this website. On an ongoing or occasional basis, many of the organizations, forums, medical centers and clinical trial databases linked on the Research or Links pages of this site also have listings of open IBS studies that are seeking participants.
Last update to the IBS Studies page and all links verified: October 2021
Online Survey: IFFGD and WebMD IBS Experiences NEW
The following survey on IBS experiences is open to any adult with IBS, age 18 or older and is a collaboration between the International Foundation for Gastrointestinal Disorders, a 30 year old science-based U.S. not for profit organization/charity and the online site, WebMD. The aim is to gain insights that will improve patient care for IBS. The survey is online and anonymous, with an estimated time commitment of 3-5 minutes. Please address any questions or concerns to the email link in the survey or to IFFGD.
Online Survey: IFFGD Long COVID and Gastrointestinal Disorders NEW
Focus Group for Inequalities and Disparities in Healthcare (for all GI Disorders) NEW
International Foundation for Gastrointestinal Disorders (IFFGD)
We would like to increase our knowledge of the disparities in healthcare for those living with GI disorders among persons of varied racial and ethnic backgrounds as well as other social determinants of health. IFFGD hopes to gain a broader perspective on the topics patients feel are most important when receiving equitable healthcare and find ways to address the gap needs. Our goal is to have a focus group meeting every other month starting in late June. If you are interested in joining the Disparities and Inequalities in Healthcare focus group, please email us at email@example.com
Online Research Study: Transition Experiences of Patients with Functional GI Disorders
Baylor College of Medicine, Texas Children’s Hospital, University of Miami, IFFGD NEW
The transition from pediatric to adult care can be challenging for a number of reasons. We are conducting a survey to better understand the experiences of patients with functional gastrointestinal disorders (e.g., irritable bowel syndrome (IBS)) who have transitioned from pediatric to adult care.
If you meet the following eligibility criteria, please consider participating in our anonymous survey.
- Currently 18 years of age or older
- Diagnosed with one of the following conditions in pediatric care:
- Irritable bowel syndrome with diarrhea (IBS-D)
- Irritable bowel syndrome with constipation (IBS-C)
- Irritable bowel syndrome with mixed diarrhea/constipation (IBS-M)
- Functional dyspepsia
- Cyclical vomiting syndrome
- Functional abdominal pain syndrome
- Transitioned to adult care for your gastroenterology care
If you have any questions, please e-mail Jordan Shapiro, MD (firstname.lastname@example.org)
Online Research Study: Psychological Health of People with IBS During the COVID-19 Emergency, University of Chieti, Pescara, Italy NEW
Posted at the request of one of the researchers involved in the Department of Psychological Health and Territorial Sciences, University of Chieti, Pescara, Italy. This is an anonymous online survey on “factors affecting health outcomes in people with IBS during the COVID-19 emergency.” Seeking adults aged 18-74 with a physician diagnosis of IBS and experiencing symptoms within the last two years. Estimated time commitment is 15 minutes. The survey is in Italian, but can be changed to English by using the drop down menu on the upper right. Please address all questions or concerns directly to the researchers at the contact information given at the link.
“Are you suffering from irritable bowel syndrome (IBS)?
The University of Chieti-Pescara (Italy) is conducting research on the psychological health of people with irritable bowel syndrome during the emergency from Covid-19.
Fill in the questionnaire on the psychological aspects during the pandemic. It is available in English version.
2020 IBS Patients’ Experience and Unmet Needs Online Survey NEW
International Foundation for Gastrointestinal Disorders (IFFGD)
Beginning in 2007, the International Foundation for Gastrointestinal Disorders (IFFGD) began conducting a multi-year comprehensive survey of people with IBS, their experiences and unmet needs. This survey attracted a large number of responses internationally and its insights have been important contributions to IBS research, medical care and support systems since then. Now in 2020, IFFGD is conducting a similarly comprehensive followup online, which IBS Impact encourages all people with IBS to consider completing. Estimated time will vary from 30–45 minutes, as some responses may lead to follow-up questions for some users. In order to take this survey, you must be officially diagnosed with IBS by a healthcare provider. For more information, go to this link. Please address any questions directly to IFFGD staff.
Alosetron Risk Evaluation and Mitigation Strategies Program
Paid Survey of Women in the United States Who Have Used Alosetron (Lotronex) for IBS-D in the Last 12 Months.
The Alosetron Risk Evaluation and Mitigation Strategies (REMS) Program is a program required by the Food and Drug Administration (FDA) to manage known or potential serious risks associated with a drug product. The manufacturers/sponsors of the program have a regulatory obligation to conduct a knowledge survey for female patients in the US who have taken alosetron within the last twelve months. Patients that meet the criteria for inclusion in the survey will receive $50 for completing the survey. The survey takes about 30 minutes and can be taken either online or by phone with a call center representative. Survey responses are aggregated and anonymized. No protected health information is required for the survey or provided to FDA or any prescribers. The survey opens on January 3, 2018. If you are a female patient in the US who has taken alosetron within the last twelve months, please call us at 1-844-267-8675 to take the survey.
The Alosetron REMS Program Sponsors
ContactME-IBS Registry of Potential Volunteers for Research Studies
County Durham and Darlington NHS FoundationTrust, United Kingdom
Seeking adults, 18+ years old, United Kingdom residents only with a diagnosis of irritable bowel syndrome. This registry was launched in September 2017 as part of a 5 year study. If successful, it may be expanded to other locations in the United Kingdom. The registry is designed to assist people with IBS in learning about available research opportunities and assist researchers in recruiting more interested volunteers. As eligibility requirements for different studies vary, it is not a guarantee that a given individual will be contacted for or qualify for a specific study, and there is no obligation to participate in a specific study if offered. You are only expressing interest and giving researchers permission to contact you in the future. This registry is open to UK residents only.
Macquarie University Functional Gastrointestinal Disorder Research Volunteer Registry
Faculties of Human Sciences and Medical and Health Sciences, Sydney, Australia
IBS is the most common condition in the functional gastrointestinal disorder/disorder of gut-brain interaction category. The Macquarie registry is seeking adults, 18+ years old. The registry is designed to assist people with FGIDs in learning about available research opportunities and assist researchers in recruiting more interested volunteers. As eligibility requirements for different studies vary, it is not a guarantee that a given individual will be contacted for or qualify for a specific study, and there is no obligation to participate in a specific study if offered. You are only expressing interest and giving researchers permission to contact you in the future.
Noisy Guts Project, Marshall Centre, University of Western Australia, Perth
The Marshall Centre, founded by Professor Barry Marshall, Nobel Laureate for his work connecting H. pylori infection to ulcers, is seeking adult volunteers with irritable bowel syndrome (IBS), inflammatory bowel disease (IBD), and without gastrointestinal conditions to assist in developing a non-invasive acoustic belt. It is hoped that the belt, which records gut sounds, heart rate, temperature and skin galvanic response, can eventually serve as a tool for the diagnosis of GI disorders.
Commitment includes online screening, consent to confirm diagnosis with one’s physician, one visit to the Marshall Centre for about 2 hours and 40 minutes of wearing the belt, plus provided breakfast, completion of online log of diet and symptoms. Option to wear the belt home for 24 hours.
For more information, see the following link: http://crowdresearch.uwa.edu.au/project/noisy-guts-project/
Impact of IBS on Social Life or Interpersonal Relationships Online Study.
The Northwestern University Feinberg School of Medicine is seeking adults age 18 years and older with a diagnosis of Irritable Bowel Syndrome (IBS) to participate in a study evaluating patients’ social and interpersonal experiences.
Are you 18 years of age or older with a diagnosis of an IBS? The Center for Psychosocial Research in GI at Northwestern University Feinberg School of Medicine is conducting a research study to better understand the impact IBS may have on your social life or interpersonal relationships, including the role that the attitudes of others may have. This study involves completing several questionnaires about your illness and well-being and should take you about 45 minutes to complete. If you would like to participate, you may do so online by clicking this link:
Your information will be kept completely anonymous and participation is voluntary. If you have questions about this study, you may contact Dr. Tiffany Taft at email@example.com.
Last update to IBS Studies page and all links verified: October 2021