This is a selection of IBS research studies that have come to the attention of IBS Impact from various sources. We encourage researchers who wish to have their studies considered for posting here or on the IBS Impact blog, or to have a listing updated or removed, to email us using the contact form on this website. On an ongoing or occasional basis, many of the organizations , forums, medical centers and clinical trial databases linked on the Research or Links pages of this site also have listings of open IBS studies that are seeking participants.
Last update to the IBS Studies page: December 2023
Teen IBS Study, Carnegie Mellon Universit
“Are you a teen coping with Irritable Bowel Syndrome (IBS) or a parent of a teen coping with IBS? Carnegie Mellon University is currently recruiting adolescents (ages 12-17) diagnosed with IBS for a study testing whether writing exercises can improve well-being and GI symptoms.
The remote study will consist of 3 remote assessments and the completion of short online writing exercises over the course of a month. Teens will be compensated up to $130. Please visit our lab website (https://www.healthandhumanperformancelab.com/teen-ibs-study) or contact the research team directly at (412) 465-0446 or firstname.lastname@example.org to see if you or your teen are eligible to participate!”
Received via the IBS Support (Official) Facebook group. Quoted description received by group administrators directly from a Carnegie Mellon graduate student researcher..
Social Determinants Related to GI Nutrition
University of Michigan
“Michigan Medicine and other experts in the field are looking for people living with IBS to participate in a survey study! The survey should take less than 5 minutes and will help provide key information regarding social determinants of health in IBS care.
Health is determined by many factors from genetics, behaviors, environmental and physical influences, medical care and a variety of social factors. By filling out this survey, you will be helping researchers have a better understanding of how some of these factors may impact IBS care.”
Quoted description excerpted from a social media post by IFFGD
Deakin University, Melbourne and the Rome Foundation: Focus Group Study for Irritable Bowel Syndrome (IBS) and Functional Dyspepsia (FD) (Online, Australia Only)
“Join our focus group study.
We want to hear from you.
Are you aged 18+ with
- Diagnosed IBS or FD
- Live in Australia
- Fluent in English
- Have access to the internet
Please email email@example.com
We want you to share your experience of living with IBS or FD to better inform future diagnostic criteria.
2.5 hours maximum online via Zoom.
$25 gift card for participation
(This study has received Deakin University ethics approval, reference number 2022-308)”
Received via the IBS Support (Official) Facebook group. Quoted description received by group administrators directly from Mind Body Deakin.
Online Survey: IFFGD and WebMD IBS Experiences
The following survey on IBS experiences is open to any adult with IBS, age 18 or older and is a collaboration between the International Foundation for Gastrointestinal Disorders, a 30 year old science-based U.S. not for profit organization/charity and the online site, WebMD. The aim is to gain insights that will improve patient care for IBS. The survey is online and anonymous, with an estimated time commitment of 3-5 minutes. Please address any questions or concerns to the email link in the survey or to IFFGD.
Online Survey: IFFGD Long COVID and Gastrointestinal Disorders
Focus Group for Inequalities and Disparities in Healthcare (for all GI Disorders)
International Foundation for Gastrointestinal Disorders (IFFGD)
We would like to increase our knowledge of the disparities in healthcare for those living with GI disorders among persons of varied racial and ethnic backgrounds as well as other social determinants of health. IFFGD hopes to gain a broader perspective on the topics patients feel are most important when receiving equitable healthcare and find ways to address the gap needs. Our goal is to have a focus group meeting every other month starting in late June. If you are interested in joining the Disparities and Inequalities in Healthcare focus group, please email us at firstname.lastname@example.org
Online Research Study: Transition Experiences of Patients with Functional GI Disorders
Baylor College of Medicine, Texas Children’s Hospital, University of Miami, IFFGD
The transition from pediatric to adult care can be challenging for a number of reasons. We are conducting a survey to better understand the experiences of patients with functional gastrointestinal disorders (e.g., irritable bowel syndrome (IBS)) who have transitioned from pediatric to adult care.
If you meet the following eligibility criteria, please consider participating in our anonymous survey.
- Currently 18 years of age or older
- Diagnosed with one of the following conditions in pediatric care:
- Irritable bowel syndrome with diarrhea (IBS-D)
- Irritable bowel syndrome with constipation (IBS-C)
- Irritable bowel syndrome with mixed diarrhea/constipation (IBS-M)
- Functional dyspepsia
- Cyclical vomiting syndrome
- Functional abdominal pain syndrome
- Transitioned to adult care for your gastroenterology care
If you have any questions, please e-mail Jordan Shapiro, MD (email@example.com)
2020 IBS Patients’ Experience and Unmet Needs Online Survey
International Foundation for Gastrointestinal Disorders (IFFGD)
Beginning in 2007, the International Foundation for Gastrointestinal Disorders (IFFGD) began conducting a multi-year comprehensive survey of people with IBS, their experiences and unmet needs. This survey attracted a large number of responses internationally and its insights have been important contributions to IBS research, medical care and support systems since then. Now in 2020, IFFGD is conducting a similarly comprehensive followup online, which IBS Impact encourages all people with IBS to consider completing. Estimated time will vary from 30–45 minutes, as some responses may lead to follow-up questions for some users. In order to take this survey, you must be officially diagnosed with IBS by a healthcare provider. For more information, go to this link. Please address any questions directly to IFFGD staff.
ContactME-IBS Registry of Potential Volunteers for Research Studies
County Durham and Darlington NHS FoundationTrust, United Kingdom
Seeking adults, 18+ years old, United Kingdom residents only with a diagnosis of irritable bowel syndrome. This registry was launched in September 2017 as part of a 5 year study. If successful, it may be expanded to other locations in the United Kingdom. The registry is designed to assist people with IBS in learning about available research opportunities and assist researchers in recruiting more interested volunteers. As eligibility requirements for different studies vary, it is not a guarantee that a given individual will be contacted for or qualify for a specific study, and there is no obligation to participate in a specific study if offered. You are only expressing interest and giving researchers permission to contact you in the future. This registry is open to UK residents only.
Macquarie University Functional Gastrointestinal Disorder Research Volunteer Registry
Faculties of Human Sciences and Medical and Health Sciences, Sydney, Australia
IBS is the most common condition in the functional gastrointestinal disorder/disorder of gut-brain interaction category. The Macquarie registry is seeking adults, 18+ years old. The registry is designed to assist people with FGIDs in learning about available research opportunities and assist researchers in recruiting more interested volunteers. As eligibility requirements for different studies vary, it is not a guarantee that a given individual will be contacted for or qualify for a specific study, and there is no obligation to participate in a specific study if offered. You are only expressing interest and giving researchers permission to contact you in the future.
Last update to IBS Studies page: December 2023