RESOURCES FOR CHILDREN AND TEENS WITH IBS AND THEIR PARENTS
Most information and resources on this website and other linked websites about IBS are applicable to both adults and children with IBS, but here we highlight information specific to children and adolescents with IBS or other functional GI or GI motility disorders.
International Foundation for Gastrointestinal Disorders (IFFGD) pediatric-specific website :
About Kids GI http://www.aboutkidsgi.org
Association for Gastrointestinal Motility Disorders
Has resources for people of all ages, with specific divisions for pediatrics, adolescents and family/caregivers.
Paid membership allows the option to be included on and receive its list of networking contacts.
AGMD main website http://www.agmdhope.org
Online support forum through Inspire.com, includes active sections for pediatric and caregiver topics (site registration with Inspire.com required; AGMD membership encouraged by AGMD but not required) http://www.inspire.com/groups/agmd-gi-motility/
Drossman Care, Durham, North Carolina, patient education pages
Downloadable educational articles, videos, podcasts and books for purchase include several on pediatric and adolescent IBS, RAP/FAP/CAPS (recurrent abdominal pain, also known as functional abdominal pain or centrally-mediated abdominal pain syndrome, a diagnosis similar to IBS without the disturbances in bowel habits) and other pediatric functional GI and pediatric GI motility concerns.
Founded by Douglas Drossman, MD, Professor Emeritus of Gastroenterology and Psychology at the University of North Carolina at Chapel Hill, founder and retired co-director of the University of North Carolina Center for Functional GI Disorders, President Emeritus and CEO of the Rome Foundation
Guest Post From a Teen for IBS Awareness Month: I Am No Longer the Lost Boy by Brayden A.
Brayden A., a 17-year old male at the time he wrote this essay, was diagnosed with IBS at age 14. He is managing his IBS well and is currently enjoying a full college experience and bright future. He wrote this essay especially for IBS Impact in April 2021.
Guest Post From A Parent for IBS Awareness Month: An Emotional Journey by Kathryn
Kathryn lives in the United States with her husband and two sons. She has a bachelor’s of science degree in psychology which included research studies in child development and group therapy. In the years since her son’s IBS diagnosis, she has invested many hours learning about the disorder. When not preparing her sons to “leave the nest,” she volunteers on the IBS Support (official) Facebook page trying to advance IBS understanding. She wrote this essay especially for IBS Impact in April 2021
Helping Your Child with IBS by Nina Pan, IBS Impact founder, and Shawn Case, founding webmaster.
(Link opens in a subpage of IBS Impact.com. Originally published in April 2012 as a guest post on the Ask Moxie.org parenting site, which is no longer active. Thank you to Magda Pecsenye, founder of AskMoxie.org, for hosting this article for many years and for allowing IBS Impact to continue to make it available here.)
UCLA Pediatric Pain Program (Los Angeles, California)
Johns Hopkins Children’s Center IBS Page (Baltimore, Maryland)
Nationwide Children’s Hospital Gastroenterology, Hepatology and Nutrition (Columbus, Ohio)
Children’s Hospital at Vanderbilt Pediatric Functional GI Program (Nashville, Tennessee)
Irritable Bowel Syndrome in Adolescents (article)
by Andree Rasquin, MD and Arlene Caplan PhD
Universite de Montreal, Montreal, Quebec, Canada
What Parents Need to Know about Their Children’s Abdominal Pain (November 2014 video)
by Miranda van Tilburg, PhD
Associate Professor, University of North Carolina at Chapel Hill
A June 2014 post on the IBS Impact blog reviewing this book by Michael Lawson, MD and Jessica Del Pozo, PhD of Kaiser Permanente of Northern California
IBS.Mindovergut.com page “Advice for Teens” (written for teens with IBS)
Site maintained by clinical psychologist Simon Knowles, PhD, Swinburne University of Technology, Melbourne, Australia.
article on MedPage Today in the “AGA Reading Room” (American Gastroenterological Association) February 2, 2017.
Melissa M. DuPen, School of Social Work, University of Washington, Seattle, Miranda A.L. van Tilburg,PhD, University of North Carolina Center for Functional GI and Motility Disorders, Shelby L. Langer, PhD, College of Nursing and Health Innovation, Arizona State University, Phoenix, Tasha B. Murphy, PhD, School of Social Work, University of Washington, Seattle, Joan M. Romano, PhD, Psychiatry and Behavioral Sciences, University of Washington, Seattle, and Rona L. Levy, PhD, School of Social Work, University of Washington, Seattle.
Published in the journal Children, September 2016. Functional Abdominal Pain Disorder (FAPD), also known as Functional Abdominal Pain, Recurrent Abdominal Pain or Centrally-Mediated Abdominal Pain Syndrome (CAPS), is similar to IBS without the bowel disturbances. FAPD is treated similarly to IBS pain. This study found that children with FAPD, whose parents were not protective, and communicated the belief that their children could handle the pain had better outcomes than those parents who were protective and believed that their children could not handle it.
The Pediatric Rome IV Criteria- What’s New?
Ilan J. N. Koppen, MD, Emma Children’s Hospital/Academic Medical Center, Amsterdam, The Netherlands. Samuel Nurko, MD, MPH Boston Children’s Hospital, Boston, Massachusetts, USA, Miguel Saps, MD and Carlo DiLorenzo, MD, Nationwide Children’s Hospital, Columbus, Ohio, USA, Marc A. Benninga, MD, PhD Emma Children’s Hospital/Academic Medical Center, Amsterdam, The Netherlands.
Published in the journal Expert Review of Gastroenterology and Hepatology, online version, 24 January 2017
U.S. FDA Approves IB-Stim, First Medical Device for IBS Pain in Adolescents, June 2019
Last update to IBS and Children page and all links verified: November 2024